Congratulations on a Successful Hypersomnia Awareness Week 2016!

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Idiopathic Hypersomnia Awareness Week for 2016 has come to an end.  We want to congratulate the community for such a strong show of support for this year’s Awareness Week!  This event has resulted in raising more Hypersomnia Awareness than ever before!
Just to recap, we had well over 1,000 views on the videos people with hypersomnia and their supporters so bravely shared with the world for our “This is Hypersomnia” campaign.  The videos were so inspiring that they even motivated others to make videos, sharing their hypersomnia experience with the world.  The Atlanta Hypersomnia Support group had over 1,000 visits to our website during the awareness week.

This strong show of support is due to you, members of our Hypersomnia community.  Thank you for changing your Facebook profile pictures and creating hypersomnia awareness posts which spread like wildfire across social media.  Many were empowered to post for the first time about Hypersomnia on their personal Facebook timelines.  We are so proud of all you have done to support Idiopathic Hypersomnia Awareness Week 2016 and we are grateful to be a part of such an incredible community.  This awareness week epitomizes the meaning of our group slogan, “We can only grow stronger when we support each other”.

Did you miss any of the powerful video stories this week?  We have created a page on our website where you can find them all!  Click below to visit our “This is Hypersomnia” Video Gallery.

This is Hypersomnia Video Gallery

I Get Ready and Then I am too Exhausted

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“This is Hypersomnia” Campaign

Welcome to day 7, the last day, of Idiopathic Hypersomnia Awareness Week!  #IHAW2016  For our last official Awareness Week newsletter, we thought it would be good to wrap up with one video from a person with hypersomnia and one video from a supporter.

The last video from a person with hypersomnia comes from Melissa.  Melissa discusses a common problem many people with hypersomnia experience.  They spend time and energy getting ready to go somewhere and then, they are just too exhausted to go.

The last video from a supporter comes from Jenn.  In Jenn’s video, she discusses the importance of connection for supporters but, this tip also applies to people with hypersomnia.

We know you will find these videos as powerful as we have.

Melissa discusses a common problem many people with hypersomnia experience.

Jenn Discusses the Importance of Connecting with other Supporters

Thank you Melissa & Jenn!

We want to thank Melissa & Jenn for bravely sharing their experiences with the world for idiopathic hypersomnia awareness week 2016, in the hopes that sharing their journey will help someone else out there who is desperately searching for answers and is feeling totally alone. We are so proud of you Melissa & Jenn!  Have Melissa’s and Jenn’s videos inspired you to share a video diary?  Please private message them to Jennifer Beard on Facebook.

Supporting Loved Ones with Hypersomnia

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“This is Hypersomnia” Campaign

Welcome to day 6 of Idiopathic Hypersomnia Awareness Week!  #IHAW2016  In preparation for Idiopathic Hypersomnia Awareness Week this year, we asked the greater hypersomnia community to help spread awareness by sharing your life experience with the world through short video diaries.  We received video diaries from people with hypersomnia and supporters alike and we will be sharing many of these videos with you each day throughout the awareness week.

Today’s videos come from supporters, Michael and Martin.  In Michael’s video, he offers some simple tips for how to take care of your loved one with Hypersomnia.  In Martin’s video, he offers some tips on how to approach having the “What is Hypersomnia?” conversation.  We know you will find their videos for supporters as powerful as we have.

Michael Shares his Tips for Taking Care of Your Loved One with Hypersomnia

 

Martin Discusses How to Approach the Hypersomnia Conversation

Thank you Michael and Martin!

We want to thank Michael and Martin for bravely sharing their supporter experience with the world for idiopathic hypersomnia awareness week 2016, in the hopes that sharing their journey will help someone else out there who is desperately searching for answers and is feeling totally alone. We are so proud of you Michael and Martin!  Have Michael’s and Martin’s videos inspired you to share a video diary?  Please private message them to Jennifer Beard on Facebook.

Hypersomnia Does Not Define You

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“This is Hypersomnia” Campaign

Welcome to day 5 of Idiopathic Hypersomnia Awareness Week!  #IHAW2016  Christine is back with us again today.  You may recall her videos describing her Hypersomnia crash.

In today’s first video, Christine is thankful for Flumazenil but it is certainly not a cure for Hypersomnia.  In today’s second video, Christine has a special message for the hypersomnia community.  She wants you to know that Hypersomnia does not define you.  We know you will find her uplifting and hopeful message to the community a great way to bring the video diaries of people with hypersomnia to a close.  Tomorrow will start our supporter video series.

Christine Describes her Life with Hypersomnia

Hypersomnia Does Not Define You

Thank you Christine!

We want to thank Christine for bravely sharing her experience with the world for idiopathic hypersomnia awareness week 2016, in the hopes that sharing her journey will help someone else out there who is desperately searching for answers and is feeling totally alone. We are so proud of you Christine!  Has Christine’s video inspired you to share a video diary?  Please private message them to Jennifer Beard on Facebook.

Having Hypersomnia Really Sucks!

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 “This is Hypersomnia” Campaign

Welcome to day 4 of Idiopathic Hypersomnia Awareness Week!  #IHAW2016  In preparation for Idiopathic Hypersomnia Awareness Week this year, we asked the greater hypersomnia community to help spread awareness by sharing your life experience with the world through short video diaries.  We received video diaries from people with hypersomnia and supporters alike and we will be sharing many of these videos with you each day throughout the awareness week.

Today’s video series comes from Diana.  Diana decided to share a video diary explaining how Hypersomnia impacts her daily life.  The second video diary she decided to share is one in which she discusses that Hypersomnia is more than just sleeping.  Diana says having Hypersomnia really sucks!  We know you will find her video series as powerful as we have.

Diana Describes Life with Hypersomnia

Diana Says Having Hypersomnia Really Sucks!

Thank you Diana!

We want to thank Diana for bravely sharing her experience with the world for idiopathic hypersomnia awareness week 2016, in the hopes that sharing her journey will help someone else out there who is desperately searching for answers and is feeling totally alone. We are so proud of you Diana!  Have Diana’s videos inspired you to share a video diary?  Please private message them to Jennifer Beard on Facebook.