Category Archives: News

Hypersomnia Support Group Events Past and Future

Lunch After October Support Group Meeting

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It was a great lunch with Atlanta Support Group members after yesterday’s October support group meeting.  Our support group has grown so much that yesterday, we had our first supporter breakout session!  We look forward to keeping that going.  PWH having a support group meeting and a support group meeting just for supporters too!  If you weren’t able to make it yesterday, we hope to see you on November 5th!  For those who attended, it was wonderful to see you!

Successful Stone Mountain Awake Walk 2016

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We want to congratulate the community on a successful Stone Mountain Awake Walk 2016.  We want to thank Sara and appreciate her taking this event on and planning it!  Great job Sara!  It may have poured rain, but we had a sunny good time.  If you were able to join us, it was great to see you.  If you missed this event, we hope to see you soon.  We look forward to doing more social outings like this in the future.

Last Day to book Snooze Cruise 2017 for $50

Today is your last day to secure your dual occupancy cabin for Snooze Cruise 2017 for $50!  However, if you want to buy yourself a few more days, complete the “I’m Interested” form here http://bit.ly/SnoozeCruise2017 Anyone who completes this form today will have until our travel agent, Deb, contacts them to put down their $50 deposit.  Every cabin that books gets a $50 on-board credit so what do you have to lose? 

——> For more information on pricing (prices listed are for 2 people), go here http://www.atlantahypersomniasupport.com/50-deposit-books-your-cabin-for-snooze-cruise-2017/

——> And join our Snooze Cruise 2017 Facebook group here: https://www.facebook.com/groups/1015711938550241/

What is Snooze Cruise 2017?

Snooze Cruise 2017 is a hypersomnia support group retreat.  We will have daily support group meetings for people with hypersomnia and breakout groups just for supporters!  So bring your friends, spouses, children, and family with you!  We are inspired by the overwhelming response we have already received for this support group retreat and have a wonderful group of people and families already booked from all over the nation, and even internationally.  80% new cruisers and so many people who have never even met another person with hypersomnia are looking forward to joining us.  Won’t you join us for this relaxing and empowering support group retreat?  We look forward to Snooze Cruisin’ with you!

Snooze Cruise 2017 Itinerary

Successful Stone Mountain Awake Walk 2016

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Successful Stone Mountain Awake Walk 2016

We want to congratulate the community on a successful Stone Mountain Awake Walk 2016.  We want to thank Sara and appreciate her taking this event on and planning it!  Great job Sara!  It may have poured rain, but we had a sunny good time.  If you were able to join us, it was great to see you.  If you missed this event, we hope to see you soon.  We look forward to doing more social outings like this in the future.

Stone Mountain Hypersomnia Awake Walk 2016

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Stone Mountain Hypersomnia Awake Walk 2016

Because a Sleep Walk on the Mountain might be dangerous!

Several of us at the recent support group meeting decided to meet and hang out at the base of Stone Mountain.   And we decided that everyone should be invited!  Our plan is to enjoy a picnic at the base of the Walk-Up Trail.  Anyone who wants to hike the 1 mile walk-up trail to the top of the mountain will do so and take a group photo at the top.  Anyone who does not want to climb the mountain may wait at the picnic area at the bottom.  The hiking group will then rejoin the picnic at the bottom.

What to Bring: your own food, drink, sunscreen and chair.  Bring a friend if you want. Bring $15.00/car to park.  Bring appropriate shoes if you want to climb the mountain with some of us.

We aren’t guaranteeing anything other than that we want to meet. We are guaranteeing that we will have a good time!

Where to Meet:  Park at the Confederate Hall Parking Lot (from the main entrance, take a right and the parking lot will be on your left) and we will meet at the picnic table at the base of the Walk-Up Trail.

We look forward to seeing you there!

While on top, 1,686 feet above sea level, enjoy amazing views of downtown Atlanta, the North Georgia mountains and the surrounding area. On a haze-free day, you can see 60 miles from the mountain.

Please Note:

  • Emergency call boxes are located along the trail and in the parking lot.
  • Pets are not allowed on the Walk-Up Trail.
  • This trail is not recommended for people with limiting physical conditions and is not wheelchair accessible.
  • Appropriate footwear should be worn.
  • The mountain is very slippery when wet.
  • If you walk to the top of the mountain and ride down on the Summit Skyride, you will need to walk the 1.1 miles back to the Confederate Hall parking lot.
  • If you ride to the top of the mountain on the Summit Skyride and walk down the trail to Confederate Hall, you will need to walk the 1.1 miles back to the Summit Skyride Area.

Congratulations on a Successful Hypersomnia Awareness Week 2016!

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Idiopathic Hypersomnia Awareness Week for 2016 has come to an end.  We want to congratulate the community for such a strong show of support for this year’s Awareness Week!  This event has resulted in raising more Hypersomnia Awareness than ever before!
Just to recap, we had well over 1,000 views on the videos people with hypersomnia and their supporters so bravely shared with the world for our “This is Hypersomnia” campaign.  The videos were so inspiring that they even motivated others to make videos, sharing their hypersomnia experience with the world.  The Atlanta Hypersomnia Support group had over 1,000 visits to our website during the awareness week.

This strong show of support is due to you, members of our Hypersomnia community.  Thank you for changing your Facebook profile pictures and creating hypersomnia awareness posts which spread like wildfire across social media.  Many were empowered to post for the first time about Hypersomnia on their personal Facebook timelines.  We are so proud of all you have done to support Idiopathic Hypersomnia Awareness Week 2016 and we are grateful to be a part of such an incredible community.  This awareness week epitomizes the meaning of our group slogan, “We can only grow stronger when we support each other”.

Did you miss any of the powerful video stories this week?  We have created a page on our website where you can find them all!  Click below to visit our “This is Hypersomnia” Video Gallery.

This is Hypersomnia Video Gallery

I Get Ready and Then I am too Exhausted

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“This is Hypersomnia” Campaign

Welcome to day 7, the last day, of Idiopathic Hypersomnia Awareness Week!  #IHAW2016  For our last official Awareness Week newsletter, we thought it would be good to wrap up with one video from a person with hypersomnia and one video from a supporter.

The last video from a person with hypersomnia comes from Melissa.  Melissa discusses a common problem many people with hypersomnia experience.  They spend time and energy getting ready to go somewhere and then, they are just too exhausted to go.

The last video from a supporter comes from Jenn.  In Jenn’s video, she discusses the importance of connection for supporters but, this tip also applies to people with hypersomnia.

We know you will find these videos as powerful as we have.

Melissa discusses a common problem many people with hypersomnia experience.

Jenn Discusses the Importance of Connecting with other Supporters

Thank you Melissa & Jenn!

We want to thank Melissa & Jenn for bravely sharing their experiences with the world for idiopathic hypersomnia awareness week 2016, in the hopes that sharing their journey will help someone else out there who is desperately searching for answers and is feeling totally alone. We are so proud of you Melissa & Jenn!  Have Melissa’s and Jenn’s videos inspired you to share a video diary?  Please private message them to Jennifer Beard on Facebook.