Category Archives: Family and Friends

Hypersomnia Support Group Events Past and Future

Lunch After October Support Group Meeting

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It was a great lunch with Atlanta Support Group members after yesterday’s October support group meeting.  Our support group has grown so much that yesterday, we had our first supporter breakout session!  We look forward to keeping that going.  PWH having a support group meeting and a support group meeting just for supporters too!  If you weren’t able to make it yesterday, we hope to see you on November 5th!  For those who attended, it was wonderful to see you!

Successful Stone Mountain Awake Walk 2016

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We want to congratulate the community on a successful Stone Mountain Awake Walk 2016.  We want to thank Sara and appreciate her taking this event on and planning it!  Great job Sara!  It may have poured rain, but we had a sunny good time.  If you were able to join us, it was great to see you.  If you missed this event, we hope to see you soon.  We look forward to doing more social outings like this in the future.

Last Day to book Snooze Cruise 2017 for $50

Today is your last day to secure your dual occupancy cabin for Snooze Cruise 2017 for $50!  However, if you want to buy yourself a few more days, complete the “I’m Interested” form here http://bit.ly/SnoozeCruise2017 Anyone who completes this form today will have until our travel agent, Deb, contacts them to put down their $50 deposit.  Every cabin that books gets a $50 on-board credit so what do you have to lose? 

——> For more information on pricing (prices listed are for 2 people), go here http://www.atlantahypersomniasupport.com/50-deposit-books-your-cabin-for-snooze-cruise-2017/

——> And join our Snooze Cruise 2017 Facebook group here: https://www.facebook.com/groups/1015711938550241/

What is Snooze Cruise 2017?

Snooze Cruise 2017 is a hypersomnia support group retreat.  We will have daily support group meetings for people with hypersomnia and breakout groups just for supporters!  So bring your friends, spouses, children, and family with you!  We are inspired by the overwhelming response we have already received for this support group retreat and have a wonderful group of people and families already booked from all over the nation, and even internationally.  80% new cruisers and so many people who have never even met another person with hypersomnia are looking forward to joining us.  Won’t you join us for this relaxing and empowering support group retreat?  We look forward to Snooze Cruisin’ with you!

Snooze Cruise 2017 Itinerary

Don’t Miss Booking Snooze Cruise 2017 for $50

Carnival TriumphDon’t Miss Booking Snooze Cruise for $50

  • Every cabin booked will receive a $50 on-board credit

  • Daily support group meetings in a dedicated space

  • Supporter breakout groups

    Only 1 week left to reserve your dual occupancy Snooze Cruise cabin at the special $50 deposit rate**.  After October 3, 2016, the deposit will increase to $150 per person.  Each Snooze Cruise cabin will receive a $50 on-board credit.  If you are thinking about joining us and are on the fence about it, consider reserving your cabin type (interior, ocean view, or balcony) now at the $50 deposit rate.  If you find you are unable to join us on the cruise, your $50 deposit is fully refundable until Friday November 25, 2016.

Click here to request more information

Meanwhile, be sure to join our Snooze Cruise 2017 Facebook Group to keep up to date, ask questions, and connect with others.

**$150 per person deposit is required for a triple or quad occupancy cabin or to select a specific cabin number.  $50 deposit is to reserve a double occupancy cabin with guaranteed cabin type (interior, ocean view or balcony) but cabin number will not be assigned until full $150 deposit per person has been paid.

Successful Stone Mountain Awake Walk 2016

stone-mountain-awake-walk-2016-pic

Successful Stone Mountain Awake Walk 2016

We want to congratulate the community on a successful Stone Mountain Awake Walk 2016.  We want to thank Sara and appreciate her taking this event on and planning it!  Great job Sara!  It may have poured rain, but we had a sunny good time.  If you were able to join us, it was great to see you.  If you missed this event, we hope to see you soon.  We look forward to doing more social outings like this in the future.

Stone Mountain Hypersomnia Awake Walk 2016

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Stone Mountain Hypersomnia Awake Walk 2016

Because a Sleep Walk on the Mountain might be dangerous!

Several of us at the recent support group meeting decided to meet and hang out at the base of Stone Mountain.   And we decided that everyone should be invited!  Our plan is to enjoy a picnic at the base of the Walk-Up Trail.  Anyone who wants to hike the 1 mile walk-up trail to the top of the mountain will do so and take a group photo at the top.  Anyone who does not want to climb the mountain may wait at the picnic area at the bottom.  The hiking group will then rejoin the picnic at the bottom.

What to Bring: your own food, drink, sunscreen and chair.  Bring a friend if you want. Bring $15.00/car to park.  Bring appropriate shoes if you want to climb the mountain with some of us.

We aren’t guaranteeing anything other than that we want to meet. We are guaranteeing that we will have a good time!

Where to Meet:  Park at the Confederate Hall Parking Lot (from the main entrance, take a right and the parking lot will be on your left) and we will meet at the picnic table at the base of the Walk-Up Trail.

We look forward to seeing you there!

While on top, 1,686 feet above sea level, enjoy amazing views of downtown Atlanta, the North Georgia mountains and the surrounding area. On a haze-free day, you can see 60 miles from the mountain.

Please Note:

  • Emergency call boxes are located along the trail and in the parking lot.
  • Pets are not allowed on the Walk-Up Trail.
  • This trail is not recommended for people with limiting physical conditions and is not wheelchair accessible.
  • Appropriate footwear should be worn.
  • The mountain is very slippery when wet.
  • If you walk to the top of the mountain and ride down on the Summit Skyride, you will need to walk the 1.1 miles back to the Confederate Hall parking lot.
  • If you ride to the top of the mountain on the Summit Skyride and walk down the trail to Confederate Hall, you will need to walk the 1.1 miles back to the Summit Skyride Area.

I Get Ready and Then I am too Exhausted

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“This is Hypersomnia” Campaign

Welcome to day 7, the last day, of Idiopathic Hypersomnia Awareness Week!  #IHAW2016  For our last official Awareness Week newsletter, we thought it would be good to wrap up with one video from a person with hypersomnia and one video from a supporter.

The last video from a person with hypersomnia comes from Melissa.  Melissa discusses a common problem many people with hypersomnia experience.  They spend time and energy getting ready to go somewhere and then, they are just too exhausted to go.

The last video from a supporter comes from Jenn.  In Jenn’s video, she discusses the importance of connection for supporters but, this tip also applies to people with hypersomnia.

We know you will find these videos as powerful as we have.

Melissa discusses a common problem many people with hypersomnia experience.

Jenn Discusses the Importance of Connecting with other Supporters

Thank you Melissa & Jenn!

We want to thank Melissa & Jenn for bravely sharing their experiences with the world for idiopathic hypersomnia awareness week 2016, in the hopes that sharing their journey will help someone else out there who is desperately searching for answers and is feeling totally alone. We are so proud of you Melissa & Jenn!  Have Melissa’s and Jenn’s videos inspired you to share a video diary?  Please private message them to Jennifer Beard on Facebook.