This is Hypersomnia
A Video Gallery
In honor of Idiopathic Hypersomnia Awareness Week 2016, we asked the greater hypersomnia community to help spread awareness by sharing their life experiences with the world through short video diaries. We received video diaries from people with hypersomnia and supporters alike and shared them throughout the awareness week. The purpose of this video gallery is to share their stories. We know you will find this video series as powerful as we have.
We want to thank everyone for bravely sharing their experience with the world for Idiopathic Hypersomnia Awareness Week 2016, in the hopes that sharing their journey will help someone else out there who is desperately searching for answers and is feeling totally alone.
Stories From People with Hypersomnia
Christine’s Story – I Just Had an Episode Where I Crashed
Christine decided to share a video diary right after awakening from a hypersomnia sleep attack she refers to as a “crash”. The second video diary she decided to share shows her about an hour after the first video. Christine thought is would be interesting to show the transition to a more wakeful state when comparing the two videos. In Christine’s third video, she is thankful for Flumazenil but it is certainly not a cure for Hypersomnia.
Christine’s Story – Hypersomnia Does Not Define You
Christine has a special message for the hypersomnia community. In her uplifting and hopeful message, she wants you to know that Hypersomnia does not define you.
Beth’s Story – Always IH, but Snippets of Me
Beth decided to share a video diary upon waking up first thing in the morning. The second video diary she decided to share shows her about 2 hours after the first video. Beth thought it would be helpful to illustrate the hypersomnia symptoms she and many others experience as they fight for wakefulness each day.
Cheryl M.’s Story – Will Hypersomnia Put the Brakes on her Road Trip?
Cheryl M. decided to share a video diary upon waking up after a nap. The second video diary she decided to share shows her struggles as she takes a short road trip to visit her brother and how she works to overcome them.
Diana’s Story – Having Hypersomnia Really Sucks!
Diana decided to share a video diary explaining how Hypersomnia impacts her daily life. The second video diary she decided to share is one in which she discusses that Hypersomnia is more than just sleeping. Diana says having Hypersomnia really sucks!
Melissa’s Story – I Get Ready and then I am too Exhausted
Melissa decided to share a video diary explaining how Hypersomnia impacts her plans for the day. She spends time and energy getting ready and is then too tired to go. She also expresses frustration about needing to take care of her mom but barely being able to care for herself.
Stories from Supporters of Loved Ones with Hypersomnia
Michael’s Story – How to Care for your Loved One with Hypersomnia
Michael is a supporter of his wife who has Hypersomnia. In Michael’s video, he offers some simple tips for how to care for your loved one with Hypersomnia.
Martin’s Story – How to Approach the Hypersomnia Conversation
Martin is a supporter of a loved one with Hypersomnia. In Martin’s video, he offers some tips on how to approach having the “What is Hypersomnia?” conversation.
Jenn’s Story – The Importance of Connection
Jenn is a supporter of a loved one with Hypersomnia. In Jenn’s video, she discusses the importance of connection for supporters but, this tip also applies to people with Hypersomnia.
Ready to tell your story?
Have these video stories inspired you to share your video story on this page? Please private message them to Jennifer Beard on Facebook, or email email@example.com.
Tips for making your video:
1.) Use your phone
2.) Minimize background noise
3.) Have something to say
4.) Save the video on your phone so you can use messenger to private message it to Jennifer Beard or email it to firstname.lastname@example.org. The video can be emailed in segments if need be since it can be edited back together.
We want to thank everyone for bravely sharing their videos in the hopes that sharing their journey will help someone else out there who is desperately searching for answers and is feeling totally alone. Nobody is alone and we can only grow in strength as we support each other.